Alopecia UK is a small national charity working to improve the lives of those affected by alopecia through aims of Support, Awareness and Research. Despite being a small charity we are still the largest alopecia charity in the UK with big ambitions to develop and grow further. Alopecia UK was founded in 2004 and registered with the Charity Commission of England & Wales in September 2005. Registration with the Scottish Charity Regulator took place in February 2014.
Our Vision
A world without alopecia or a world in which people with alopecia live the life they want with confidence.
Our Mission
To improve the lives of those affected by alopecia.
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Support:
Our aim - we will provide impartial information, advice and support to help people feel less isolated.
We do this through:
Awareness:
Our aim - we will raise awareness to the general public and healthcare professionals about alopecia and its psychological impact.
We do this through:
-
Promoting awareness to medical professionals
-
We attend conferences, both with stalls and as speakers, engaging with medical professionals to highlight the patient experience of alopecia with an aim to increase understanding and empathy
-
We have developed
an education module with the Royal College of General Practitioners
, specifically for GPs, in order to enable more GPs to improve upon their knowledge and understanding of alopecia
-
We have worked with organisations to create a
Charter for Best Practice for NHS Wig Provision
to help tackle the disparity in wig provision and ensure people can access the wigs they need
-
Promoting awareness to the general public
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We support media requests about alopecia (including TV, newspaper, magazine and radio opportunities) by finding participants to take part or one of the charity staff team taking part directly
-
We facilitate active and engaging social media platforms, including
Facebook
,
Twitter
and
Instagram
-
We develop and sell merchandise through our
online shop
-
We develop, sell and distribute
children’s story books
to increase understanding of alopecia within the Primary School age group
-
We work with our
ambassadors
to raise the profile of both the charity and also alopecia
-
We facilitate large scale national
events
whereby large groups of people attend to raise awareness of alopecia in public spaces e.g. our annual trip to Alton Towers
Research:
Our aim - we will provide hope and confidence to people with alopecia by funding research into its causes, with the aim of finding treatments, and ultimately, a cure.
We do this through:
-
Having a
Research Committee
made up of scientists, researchers, clinicians, pharma representatives, psychologists, and patient representatives to provide a
Research Strategy
for the charity to work to in 2019 and beyond
-
Providing funding for small scale
research projects
-
Supporting researchers to find participants for their research studies
-
Supporting an
alopecia biobank
through funding sample collection
Our Values
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To be open, honest and act with integrity
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To work productively in partnership with others
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To be passionate and motivated to make a change
-
To appreciate the skills, expertise and commitment of our Staff, Trustees and Volunteers, many of whom have personal experience of alopecia
To see our latest annual report and accounts click here
To see our 2021-2024 Strategy and 2021 Delivery Plan click here